Aunty Kate, Poppy, Daddy, Mummy & Isla all drove down to Victoria & South Australia for the Sprintcar Easter Trail.

Wet weather cancelled the first night's racing in Lara, so we stayed in Geelong and played cards and laughed all night long.

Next day we drove to Mt Gambier in South Australia - a good night's racing, lots of clay everywhere, which made pushing a pram a HUGE challenge.

Night 3 was in Warrnambool - oh how I love this place. It was absolutely FREEZING but good racing! Poor Isla was so wrapped up in layer after layer. Ian and I spent the night passing her from one another to use her body warmth LOL

We drove home along the Great Ocean Road. Will make another entry and post some pics of that. It was beautiful (again!) and I'm so glad that we took Isla. Can't wait to take her back when she's a bit bigger and can really appreciate it all.

Monday, March 20, 2006


Missy Moo had her appointment with the Opthamologist Dr H today, who we had to wait 2 1/2 hours to see - *insert cranky smilie here* Lucky he was really nice!


She was a very brave girl, despite the fact that he literally had her eye ball pushing out of her eye. Poor little mite soldiered on, although Mummy's ears are still ringing!!


The good news is that he said that her eyes are fine WOOT WOOT!! One worry to cross off the list! She is slightly long-sighted (just like her Mummy) but he believes that it will correct itself by the time she's ready for school!


We don't have to worry about having her eyes checked for another 3 1/2 years - thankfully, we're in no rush to go through it again!


We're waiting to be contacted by the Co-ordinator for Pathways so we can get involved with the Spastic Centre and then hopefully be accepted into the Cerebral Palsy Clinic at either Sydney Children's Hospital or Westmead. Fingers crossed we get in so we can kiss the Paed goodbye!


She's doing really well in all departments now, eating is still an issue, but Isla now has 11 teeth - with another 2 on the verge of cutting through! She's sleeping like a bandit now, so I think that's helping her keep the weight on!


Still trying to walk, little dare devil is even standing without holding on - I think she'd like to see her Mum with a pace-maker by the time Im 25!


Will post another physio update soon!

Monday, February 27, 2006


Latest update from Isla's Paediatrician....


He's still concerned about the tone in her legs, and seems quite concerned that Im not a blubbering mess, it's as though he feels that Im not taking it seriously :S


Well, little Miss has FINALLY managed to GAIN weight!! WOOT WOOT! She's now 8.4kgs! The heaviest she's been since October 2005 :D


Other news, we have to visit a Paediatric Eye Clinic with Dr H. He's from Westmead Children's and is apparently very good. Im not sure exactly why she's being referred to him. Paed said something about "just checking her field of vision" but didn't say why...hmmm.


We are also waiting a call back from Dr A who is one of the top Neurologists. He's from the Sydney Childrens Hospital at Randwick, and he spends 1 day a month at Campbelltown Hospital. Apparently the wait to see him is quite long, so we may travel to Randwick to get it over and done with. Isla will be sent for an MRI to see what damage there is to her brain, despite the CT scan coming back all clear. She has to have a GA for this, so it won't be as stressful as the last visit to hospital for her, poor little mite.


I think that's all for now...((((HUGS)))) to all

Just some old photo's of Isla...She's changed so much. I love the little person she's grown into, but I miss the cuddly little baby she used to be!

Friday, January 06, 2006


Happy Birthday my little Darling!!


I can't believe you're 1 already, seems like only yesterday I met you and fell head over heels in love with you


Mummy loves you more than all the stars in the sky


xxx

Friday, December 30, 2005


Well, my little duck will be 1 this time next week!! I can't believe how much she's grown and each day she surprises me more and more!!


Not really much to update though, she's crawling like a champion and can go from one end of the house to the other! We play peek-a-boo and she crawls into different rooms looking for her Mummy and Daddy


Still hasn't put on much weight, seems to be stuck at 8kgs but eats like a horse. But still, she's getting longer!!


She went for her 1st swim on Xmas day and adored it loved it so much that her little jaw was chattering because it was getting cold in the water, but she kept giggling her head off...Today Nanny had to stay in the pool with her because she screamed when she tried to take her out!!


She's a real babbler now, baa is still her favourite, but also says Pa, Yum & I-yah which is her best effort at Isla - funny how she won't say Mum or Dad - Guess who runs this household


Her physio is going really well, we went from weekly visits, to fortnightly, now every three weeks. Our physio is so impressed with her progress, he, like the rest of us, is so very proud of her Isla is now pulling her self up on the furniture and is trying to stand! Although she's on her tippy-toes, she's doing it!!


Isla will be fitted for her AFO's on the day before her birthday (what a great present ) so we're not looking forward to this, but alas, it needs to be done!


Her naming day is in a week and a half, I still have nothing organised, have no idea who's coming, but hopefully it will be a good day

Thursday, November 24, 2005


Yesterday had to be the most heartbreaking & exhausting day of my life.


I took Isla to the hospital for her CT scan and blood tests. We were admitted at 9.30am and went for our CT scan at 12.40..She spat out most of the drops that they gave her to sedate her, so she wouldnt sleep for the CT - after 1 hour and 45 minutes of me trying to rock her to sleep!


So back up to the ward we went to have a cannula put in and her blood tests...they'd left the numbing patches on for 3 hours and her skin was red-raw poor little thing, they're meant to be left on for 45 mins max...


It took 4 people to hold her down to get the blood tests done (and this was with Isla wrapped in a bed sheet with only one arm out!) She cried to hard and for so long and there was nothing I could do about it but cry along with her....The cannula and blood tests took 20 minutes...


So back to Radiology to have the CT - this time she was given sedation through an IV - which only made her drowsy and floppy but worked well enough to get the CT done. It was so scary, they had a Paediatrician stay with her the whole time in case something went wrong because they weren't sure how much sedation they'd given her and thought she may overdose


Anyways, our Paediatrician met us at 5pm, both of us utterly exhausted and dying to leave...He gave us the fabulous news that the Cerebral Palsy is so mild that it there is absolutely no indication of it in her brain (it's that mild & minute) I was ecstatic, he checked her legs again and said that there's still stiffness, but it's getting better. He said with physio it should be corrected almost 100% and if not, then she'll have Botox injections to relax her muscles. He said we wouldnt have to see him again for a few months He showed her reflexes to some medical students and described her as having "True Spastic Depligia" but he didnt say it to me.


He's still worried about her weight, she's only 7.8kgs So he said he'd better see her again in 3 weeks just to check her weight.


All her bloodwork came back completely normal but we still have to wait 3 weeks for her chromosome inspection to come back