~ Violet ~
8 years ago
Thursday, May 28, 2009
I received a call from the Spastic Centre on Friday saying that they're picking up Isla for OT and physiotherapy! YAY!
I love pur physio, but I also want her to have a second opinion, from people who deal with CP daily.
She said they didn't have any appointments until July, yet she sent me an appointment card with a booking for Monday. Seems some wires have been crossed, I must remember to call and confirm exactly what's going on.
Spoke to her physio today, he called to change the time of one of her appointments for serial casting after the botox. We rescheduled a heap of appointments so Dr L can see the effects of the botox before we do casting.
He asked how I was finding her since the Botox, and I can definitely notice a difference in how easy it is to get her AFO's on now. He said that's a very good sign. We went away to the beach these past few days and Isla was making COMPLETE foot prints in the sand, so she's getting heel strikes, which Michael said was very good too.
I spoke to him about the new brace. He is pleased she's getting it. He said she'll wear it at night and during the day if she's going to do loads of walking. He said the aim of the brace is to stop her leg turning in, and he thinks it will be very beneficial for her. Time will tell!
She's booked in for a Multidisc screening that I had difficulties booking (see here!) in 2 weeks time. I have a massive questionnaire to complete in the mean time.
Loads of stuff happening these next few weeks, I hope I can keep on top of it all.
Oh, and I should add, remember my last post I talked about how relieved I was that Isla couldn't recall anything about the Botox process? Well, seems it just took a while to come back to her. Little Isla remembers EVERYTHING, the needle, the sedation drops, the cling wrap, the jelly. EVERYTHING. :(
Tuesday, May 5, 2009
Far Out.
After a frustrating time on the phone yesterday with a woman from the Hospital Isla will be going to for Botox, I finally managed to confirm her admission for the 7th.
Then, yeseterday afternoon, I receive a letter from the hospital asking me to confirm Isla's admission for the 21st. Huh? I called them and explained she's booked in for the 7th, it was confirmed earlier in the morning. Lady I'm speaking to on the phone says, "Disregard the letter about the 21st, she is booked in and ready to go for the 7th".
Excellent.
Cue phone call exactly 2 minutes after I hang up from the Hospital, from Dr L's receptionist, "Hi Mrs F, I'm just calling to let you know Isla's Botox has been rescheduled for the 21st of May". Argh!
She went on to explain that there is no anaesthetist there on the 7th, and there are only 3 children being done on that day, so they're postponing it for 2 weeks.
Now I have to call Michael the Physio and re-schedule the months worth of appointments for casting we made for her following the botox, and see if she can get in to see him again before the 21st. Thing is, I think Michael was considering another week of casting before she had botox on the 2nd of June (the original date we were given) - we'll see what he says when I call him today.
Starting to think all these changes are for a reason??????
Thursday, April 23, 2009
Enter panic attack.
Today while in my favourite ever store, Sparty's, I received a phone call from Dr L's receptionist.
She told me that Dr L wants Isla's botox brought forward from the 4th of June to the 7th of May - which is in 2 weeks time.
I said "Of course, we'll be there" and hung up. I didn't think to ask any more questions.
2 weeks.
I couldn't concentrate on anything from that point on. I browsed the aisles aimlessly while trying to ring Hubby to get him to cancel the day off he'd put in for June and ask him to bring it forward to the 7th of May.
Hubby said there's no way he can get the 7th off as they've just authorised his RDO for the 6th of May as well as approving his time off in June.
Great.
Great.
Rang Mum to let her know what was going on and to see if she could look after Harper for the day. She said no problems. Relief.
Leave Sparty's empty-handed. This NEVER happens. Mind still spinning, this is all too quick.
I know I've been banging on about Botox for years now, but it's never been this close. I was just starting to come to terms with June being so close, but now it's 2 weeks away.
Breathe in. Breathe out.
I can't explain why I'm so petrified at the moment. I've known she needs it for the longest time. I missed my cousins wedding because we were saving up for it (before she was 2 where it's not subsidised) but she didn't need it. She was meant to have it last May, but I decided against it after all that FDA stuff with the deaths in the US.
Trying not to cry now.
Hope I can hold it all together for Isla's sake at the hospital. She'll be terrified if I'm upset, even more so than I expect she already will be.
Will see if I can get a gas mask to get her used to it. To get me used to it.
We see Michael on Monday. So much to discuss.
;;
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