Sunday, March 22, 2009

Bad Mummy...

I have been SO very slack. I do genuinely come online to update Isla's blog but get distracted by Twitter *hides*

So, what can I tell you about Isla. We went and had a review by the paediatrician. That went well - it was very brief though. He mentioned that her therapists have all indicated that she is very intelligent. Height and weight all normal (although I didn't think to ask how tall she is now). Weighs 14.5kgs.

He gave me a phone number for a place called Rainbow Cottage to call. According to the Paed, 2 doctors, Dr W and Dr B would perform something they call a CAT assessment to see what sorts of aides etc Isla may need when she goes to Kindergarten next year (EEP!). I called the number but they told me to call a different number, so I did. Once I got hold of the people on the new number they told me I was out of the area and to call our local health service. So I call the local place at 12.58pm they tell me to call back at 1pm. How utterly irritating. Call them back and ask them to organise a CAT assessment for Isla - they don't even know what CAT stands for (neither do I!) and that they'll get an intake officer to contact me and help me book Isla into a local school. Can't be bothered explaining we won't live in this area next year..all too complicated. "Someone will call you back" they said. 2 weeks later, I'm still waiting.
Spoke to someone at the Spastic Centre. They gave me a number to call to join a parents group/morning tea?? type set up. Not sure that I'm ready for that. The thing is, Isla is mild - quite mild. We are very lucky. I would feel like a complete fraud to go to a parents of CP kids group and pretend that I know how hard it is for kids with CP - the reality is, I don't. I can't imagine the daily heartache and stresses that the parents of severely or even moderately effected children is like. My heart goes out to them.
We'll be joining a school starters group at some point in the near future, we're on a waiting list. I have a feeling the lady may have called me the other day, but I am locked out of my messages. Must call them tomorrow and see.
Botox clinic is on Wednesday. This will be interesting. We haven't had the botox clinic for quite a while, I can't even remember when the last one was, well, there was one in October but we didn't stick around because Dr L was running late and I was heavily preggers. I am quite looking forward to hearing what Dr L thinks about her progress. Must remember to take AFO's and hip XRays and Tap shoes - she walks really well in them!

Dancing, how she loves it. It's beautiful to see how excited she is about dancing - particularly the tap dancing. Parents have to wait outside for the 45 minute lessons, when they come out of the hall it's the cutest thing ever. As I said above, she walks surprisingly well in tap shoes, I think because they have a slight heel on them, and also because they obviously make a tapping noise when she makes a heel stirke. Thank god they're useful at $65 a pop.

Swimming lessons still going well. Mondays are her favourite day of the week. She can dog-paddle on a pool noodle, and went under water and paddled about a metre on her own last week, which she hated, but she did it nonetheless.
Will update again after Botox Clinic.


Kt said...

So not a bad mummy!

Isla looks adorable in her dancing costume!!

Anonymous said...

Ally, Don't feel like a fraud! I think you are entitled to attend a group like that no matter how mild or severe a child's CP is.

How irriatating getting the run around for the assessment, hope you can get it all sorted and speak to someone who can help.

She does look lovely in her dance costume. I know those tap shoes are full on expensive!

Hope all goes well with her Botox Clinic, please let us know.

Alison said...

She's so adorable - especially in the dancing outfit.

You are definitely not a fraud - at the morning tea's I've been to there have been huge variations among the children and their abilities. I would love to see you at a morning tea - although I think we are in different areas???