Thursday, January 21, 2010

Botox follow up.

My little possum went for her Botox follow up appointment with Dr L today.

I was very glad that this appointment was coming up because Isla has started to have issues with her bladder and bowel, which have been becoming a bit of a problem.

He seems to think it *could* be the result of the botox, given that she was injected higher than last time {this time in the hamstrings rather than the calves} so it's entirely possible that it could be the effect of the botox on her bladder/bowel.

So, we have to go to a GP and organise a urine sample for Isla, to rule out a UTI {which, Dr L said doesn't account for the loss of sensation with the bowel}. Apparently children commonly don't have any of the associated discomfort of a UTI that an adult would experience, and sometimes the only symptom can be incontinence. So, should a urine test rule that out, then we need to wait and see whether it continues once the botox wears off {in a few weeks time}.

If it doesn't, she'll need an MRI on her spine, as apparently there's some research that shows that some children with Cerebral Palsy develop cysts on the spinal column which can lead to lack of sensation in the bowel/bladder.

I hope it's just the botox.

Dr L has NEVER had a patient with this problem following botox, despite it being listed as a side effect from the injections on the information sheet given out before deciding to undertake treatment with the Botox. He said we should feel privileged {TIC!}.

He's keen to avoid the GRAFO's {I cant remember what the GR stands for} as he thinks they'll be too cumbersome for Isla. So, in the meantime we need to have wedges fitted to the orthotics and see how they go, before having a new set made up by the wonderful Rob. I was hoping to organise AFO's before she starts school, but it doesn't look like that will happen until at least March.

Friday, January 8, 2010


Happy 5th Birthday Isla.

I cannot believe you're five. I just can't. It only seems like yesterday I bought you home from the hospital, yet here you are, already hitting me up for a $1 raise in your pocket money because "I'm FIVE now Mum".

I am so proud of the little girl you've grown into, so polite and thoughtful. So smart and beautiful. I love you so.

5 years ago...


Sunday is your much longed for McDonalds party. You have been counting down for this for weeks.

The world is yours for the taking, my little duck. I know you're destined for great things. You amaze me every single day.

We took Isla to the Botanic Gardens and met up with Bron from Big Brother & Little Sister, and Di from N0thing but Everything. Two beautiful ladies, with their gorgeous children. Such a great way for Isla to celebrate the big 5.

She was spoilt rotten, with more spoiling to come on Sunday.

Five years goes by in the blink of an eye.

Sunday, January 3, 2010

Oh how they grow...

This is Isla modelling her new school uniform.

She starts school in a

She'll be 5 in 3 sleeps.

Where has the time gone. My sweet little girl is all.grown.up.