So, we're about to head out the door when the phone rings. It's a lady from the Dept of ACDH. Sh was lovely, but did mention that Isla doesn't qualify for anything from them because she doesn't have an intellectual impairment....but hang on, what about her physical one?

Her advice? Try MDS {our local disability service providers}. I'm sure they'll be of great help {note sarcasm here}. I have emailed them, I can't wait to hear them say she's not eligible.

Why is this so difficult? Why aren't physical disabilities being taken into account for these types of Departments? Why are these kids {and adults for that matter} forgotten? Where's the equality?

We head off to see Dr L. His other appointments are running late so it's a perfect opportunity to discuss things with him. First and foremost, he goes over Isla's xray and ultrasounds. No problem with her kidneys and the way they drain {phew!} she does, though, have a compacted bowel which he believes is putting pressure on her bladder and causing the incontinence. Can see a tiny smile of relief on Dr L's face at this news! We need to see or Paed, Dr F for treatment.

Dr L mentions he's "heard through the grapevine" that Isla doesn't have access to any services. I have a total panic thinking he's been reading my blog, {I am going back in my mind thinking, hoping I have ben nice!} and he says that the wonderful Orthotist, Felicity, that made Isla's new "helpers" had spoken to him about it. Bless her {did I mention she has new helpers? They're "rainbow" and she loves them}.

Felicity is wonderful, really wonderful. She asked all the questions I'd wanted someone to ask me, she listened, and she acted on it. This never happens! She's amazing. I can't wait to see her in 2 weeks at Botox and thank her.

I digress.

Dr L asks about how she gets around school. I say fine I guess, I haven't been told otherwise, she generally has an aide with her when she's navigating the playground, but misses out on some of the sport/exercise etc. He asks how she goes on excursions - they haven't had any yet. He suggests the school provide her with a wheelchair. He then says I should look at getting one for her too for longer walking trips {longer than 500ish metres}.

I gasp.

I wasn't ready for it.

I suggest perhaps an "old lady walking frame", he nods. I suggest elbow crutches, he nods.

It hit me like a tonne of bricks. I knew it would happen at some point but I didn't think it'd be now.

We go on to talk about the Medicare safety net, and how I need to register for it, and should be able to claim Isla's physio expenses. He agrees with me about the crappy way TSC is set out. AND it turns out that while we lived with Dad we could have and should have been accessing TSC campus about 15 minutes from home, not the place about 45 minutes away, but that's a whole other rant in itself. He agrees that it'll be hard to qualify for anything given Isla has no Intellectual Impairment.

What to do now?????

Two weeks til Botox. Wish us luck.

PS Here's Isla in her new 'Helpers' ready for school - complete with flashing shoes to help her get that all important heel-strike ;)