Tuesday, April 28, 2009
Thursday, April 23, 2009
Great.
Labels: admission, Appointments, Botox, Cerebral Palsy, Hospital
Monday, April 20, 2009
Thursday, April 9, 2009
Here's a snippet from the Botox assessment. This is what Dr L wrote in his notes about Isla - full of lots of technical stuff, all of which is completely lost on me, but some others may find it useful. I thought I should pop it on here, given that I will no doubt lose the actual piece of paper it's written on. I haven't received a letter like this before, so it's interesting to read all of this, even if I don't understand it ;)
Isla's OT reported that with her Peabody Developmental Motor Scales assessment of her fine motor skills, Isla scored well within normal range. Isla has not yet developed hand preference but prefers to use her right more than her left. There has been a significant decrease in mirroring of her hand movements and there is less tremor.
Michael has also been seeing her privately. He notices internal rotation, particularly of the right leg with the need to circumduct the right leg for clearance of the left. This improved after serial casting to her right leg for 2 weeks in early February 2009. Her mother also agrees that Isla was walking much straighter but the effect of this was not sustained.
Indeed today when Isla walked, she was leading with her right pelvis so the left pelvis was retracted. Her foot progression angles were + 20 degrees on the left and - 40 degrees on the right. Initial contact was with the right forefoot but she did achieve heel contact on the right in mid-stance. At times, she had left forefoot contact initally as well. She had circumduction of the right lef to assist with clearance. Isla was slightly crouched by up to 10 degrees at the knees during mid-stance.
Isla was demonstrating increased tone in the right gracilis. Passive hip abduction in flexion was approximately 45 degrees on the right and 50 degrees on the left, and in extension approximately 25 degrees on the right and 30 degrees on the left. There was internal rotation bias at the hips in extension to approximately 80 degrees on the right and 60 degrees on the left, with external rotation being approximately 30 degrees on the right and 40 degrees on the left. there was no excessive tibial torsion. Foot-thigh angles were + 20 degrees. Gastrocnemius length bilaterally was approximately + 15 degrees with the initial catch at - 15 degrees on the right and - 10 degrees on the left. Soleus length was + 25 degrees with initial catch at +5 degrees on the right and + 10 degrees on the left. There was sustained clonus bilaterally. Popliteal angles were approximately 20 degrees with no catch.
Thursday, April 2, 2009
Isla's kindy sent home a really interesting hand-out this week about school readiness. I've never really thought twice about not sending her to school once she reached the age where she could start. Now I'm reconsidering.
I'll share it with you..It's called "Am I Ready for School?"
Dear Mum and Dad,
I was born after March so please carefully consider my readiness for school
next year before enrolling me.
Remember that the legal starting age for school is 6 years of age.
Remember that I may be a whole year younger than children who will start
next year, and I may not have the social and academic skills necessary to
compete with these children.
These things may not show up until the later years of schooling and the
decision you make will affect my entire life and attitude to learning. Please
give this matter some serious thought.
To cope with school I need to be self-confident and have a positive self
image, not just at home where everything is familiar, but also in a large group
situation.
I need to be able to communicate freely and be verbally understood. I also
need to be able to follow complex directions.
I have to be able to concentrate on any activity for a set amount of time
to complete a task.
I have to be independent and able to care for myself - toileting, dressing,
and taking care of my belongings.
I also have to have social skills - being able to deal with frustration,
anger, being able to co-operate, respect others and their belongings and to
share.
Mum and Dad...being able to write my name, know my ABC and how to rote
count are not so important. If you are going to teach me these things, please
make sure:
Writing should be taught in the NSW foundation style. It has special letter
formation and the direction of the hand movements to form the letters is most
important. It is very confusing for a child to be taught one way at home and
another way at school. Please put a capital letter at the start of my name only
eg: Kylie not kylie.
Knowing my ABC does not really help me read. It is more important for you
to read to me, listen to me and talk with me.
In order to be ready for school, I need to have developed my:
- Fine Motor Skills - hold pencil and brushes, thread items, manipulate
dough. - Eye-Hand Co-Ordination - Threading, cutting
- Gross Motor - active play, climbing, throwing, catching, running
- Concentration - ability to participate in group discussions and
activities. - Social Skills - able to cope with emotions, have ability to take
turns.
The 50 most important skills for children commencing school:
- Use the toilet independently.
- Follow verbal instructions
- Dress & Undress
- Identify/recognise own name in print
- Look after own belongings
- Share with peers
- Express/indicate needs/wants
- Hold pencil to make marks on paper
- Keep still for short periods of time
- Separate from parents at school
- Take turns
- Speak clearly
- Identify own school bag and belongings
- Open lunch box
- Use tissues
- Say their name
- Know to/how to wash hands after toileting
- Play with peers appropriately
- Respond to their own name
- Communicate with peers and teachers
- Ask and answer simple questions
- Use scissors
- Tie shoelaces (at least practice this lots)
- Write their own name in lower case letters
- Listen to a story
- Put things away after use
- Know common colours, shapes and numbers
- Listen to instructions
- Eat independently
- Participate in group activities
- Know own name
- Speak in complete sentences
- Adequate concentration span
- Listen to others speak in a group
- Awareness of why they are at school/keenness to learn
- Count to 10
- Show an interest in books
- Acceptable behaviour for school
- Show respect to teachers/adults and manners
- Ask for help
- Hold book and turn pages correctly
- Eye contact
- Share an adults attention with other children
- Recite nursery rhymes/simple songs
- Know address and phone number
- Be familiar with/use pencils. scissors, glue, paintbrushes
- Attempt drawing
- Fine motor skills
- Walk up & down stairs safely
- Accept correction/follow request appropriately
So there you have it. Interesting.