Tuesday, November 14, 2006

Brissie Trip

Tuesday, November 14, 2006

So much has happened and I haven't had the chance to come in here and update.

We were so incredibly lucky to have a very special and beautiful person, Erin, organise a Charity Golf Day to raise funds for Isla. Erin is, without question, the most wonderful and selfless person on the face of this Earth. She put in so much hard work and so many hours which culminated in an amazing day, all for our little Isla.

We flew up to Brisbane on Thursday Nov 2nd, the Golf day was on the 3rd. It was incredible... :)

While in BrisVegas, we met the gorgeous Rel & Gabs!! Was definitely a highlight of our trip! Little Gabby is such an inspiration to us, she is almost 3 and has Ataxic Cerebral Palsy. Her improvements in the past 6 or so months have been absolutely mindblowing!!!

Hmmm what else has been going on....

Isla has lots of new words, too many to name, about 70 - 80 all up :) She has her gorgeous new AFO's too, no longer cries when they're being put on, but starts to pull on her shoe laces to take them off once she's had enough of them! She wears them for anywhere between 8-12 hours a day depending on when she wakes up! They are definitely making a difference though. Even though she rarely stands up in them, once they're off she can stand completely flat footed and cruises most of the time :)

The entry above is what we were given today at the PAHU - the assessment report from the Multidisc. screeing...

We had our first appointment with our speechie Kate, and our OT Melinda who are both really lovely!! Isla did pretty well until she cracked it when Ian took the playdough off her!

They're stoked with her fine motor skills, they're bang on where they should be :D Her gross motor skills are being looked after by Michael but they're improving ever so slightly every single day :)

Speechie is over the moon with little Missy's language skills since the screening! We're still going to see her just to get some tips on how we can best encourage her language, but they're stoked with what we've been doing with her.

OT is concerned about her associated tone/mirroring. She tried to show us some exercises to do today but Isla wasn't playing the game! Basically, we need to make the two halves of her brain function separately. To do this, we have to make her reach across her body for objects by holding down one side and putting toys etc on the other side...seems easy enough...in theory...we'll see both Kate & Mel every two weeks.